Thursday 11 June 2015

7 March 15 - evening all ... On reflection a fair day at times very stiff and rigid which is just fine, but a lot of tthe day been a bit glum... especially when alone.. keep telling myself it will get hard/er so in the Rusty way I have decided to kick ass....soon it will all be over and then....
so its nearly half ten... this evening I managed a couple of frames of snooker ...no not a real table duh!! the virtual snooker league... check out my web site...
Skyped home which as always is brill but bloody hard.. moving on as welling up... please no more tears!!
oh.pic of my dinner!!
I can not fault the staff, they are fantastic, bearing in mind I am on a general ward for all neuro issues. so to deal with complex issues and adapt like they do .. absolutely brilliant. good night to all see ya soon

7 March 2015 -some day this is turning out to be..i feel really crap and to kick ur lappy died, got it back thou....Not sure but after the disaster at 5am I am playing catch up with meds..waiting to see Doc..mouth red as a beetroot
Amazing how the day changes, feeling glum then who walks through the doors... Jess and Niall dead chuffed and just the tonic. I hear a bleep... nope not a pager.. appo time BRB - and later that day....
Guess what I did?? no, erm no!! I managed to walk outside with Jess and Niall.. pic taken to prove it...ready for a nap...



7 March- wooo, what a crap night, i dare go to sleep more than 3 hours and bang i dont wak up in time to set pump or take sinemet. so for the next hour or so i am right stuck, dam shit this i hate it. anyway they get back on ....
5th March -Today has been so hard, after the appo went down at 11am. I really could not function very well. My emotions became uncontrollable, every thought of family well it was like the Niagara falls!! Now I really am deep in to withdrawing… this is shit!!

6 March- its 3am for some reason I am dyskenetic. loaded game snooker...not really in the mood!
Skype with Bryn Davies...he is a legend.. make me laugh. mum rings 4 times...eventually we speak. 
all quiet now, the Appo is reduced by a 1/2point. I feel rather stiff, but quite good. I manage a walk with the nurse, knackered now but it was great.
5pm nurse arrives to change lead.. my fault but the driver change was a disaster!! Consultant discussed the plan further... no further decrease until Monday!!
At last peace, happy just to sit here... really could do with out visitors just not in the mood.
Mandy, Dave and Shannon arrive- what a great surprise. With in minutes they have me laughing.. fantastic the came...Jess and Niall arrive also. I see a pressy lol, party on!! she is doing my washing...not undies thou!! I skype Lou and Ali, this is fantastic.
Wow!! Dad and Stu arrive laden with bags i don't know which way to turn....love it but boy i am hanging!!
I am now alone, !!

It is not final

Parkinson’s Disease! is not the final frontier. These are the blogs of the Rusty Hale. His new mission: to explore this strange new world after DBS, to seek out a better daily life after Appo-Morphine, to find new ways to adjust to living with PD, to boldly go where no Rusty has gone before….


https://www.youtube.com/channel/UC0XO5Azcltn78lVjTDwg3MQ
https://www.facebook.com/pages/Parkinsons-Disease-and-Me-Rusty/1534811320125147

Me, my Parkinson's journey

Parkinson's Disease and more!! I threw this page together to give a real life account of living with the disease, for me , family and friends read on...